skip navigation

How's Joanie Doing?

HOW'S JOANIE DOING?

November 26:  5 days of oral chemo completed and immunotherapy infusion received on Wednesday before Thanksgiving.  Lots to be thankful for in 2021, as each holiday & celebration means so much.  Next up is an MRI & visit with her neurosurgeon Dr. Ali Krisht on December 3.  That will give us an indication of what the next couple of months will bring.  Either way--we praise God for another day, another hug, another family get-together.   Life is certainly precious.  It's going to be ok.

November 18:  Joanie's oncologist decided her platelet count was sufficient to start oral chemo today, so she did.  Good news is that's another weapon against tumor re-growth.  The bad news is that it is chemo.  She has a good attitude about it and has finished the 1st Christmas tree.  Don't ask.

November 17 quick update:  Well, rats.  Joanie's platelet count remains a bit low, so she can't resume oral chemo for at least another week.   Low platelets can cause a bleeding disorder, so we remain cautious.  Today was a good day, so Christmas decorating has begun.  She continues immunotherapy infusions next week.  

NOVEMBER 4, 2021 UPDATE

Joanie’s radiation oncologist is 80% sure the area of concern on her new MRI is a small new tumor to the rear of her prior surgical site.  He & her neurosurgeon ordered another MRI in 4 weeks.  If it shows growth, she will have craniotomy surgery to remove it—followed by more of the outpatient radiosurgery she had earlier this year. 

She’s back on steroids to reduce brain swelling, which has caused recent headaches and body pain.  Her platelets dropped over the past 2 weeks, so we are delaying her immunotherapy infusion & oral chemo for a week to check them again.  All of this wasn’t unexpected given her recent symptoms. 

We are confident in her doctors’ approach & feel good about today.  Joanie has faith this will all help her feel better.  After 46 years of marriage, we don't give up easily. We are nearly 16 months into this glioblastoma journey and we cherish our time--even the tough times--together.

If you are also struggling in your life, don't hesitate to email us at the Region office.  You are not alone.

***********************************************************

Thanks to all of you who continue to express their concerns and offer prayers about Joanie's continuing battle with brain cancer (glioblastoma) since July, 2020.  After two brain surgeries, she continues to take oral chemo for 5 days monthly and some infusion to help slow recurrence of the tumors.  Fatigue remains a constant enemy, but we know this will pass.

We have resolved to trust our faith and not worry about tomorrow.  We are enjoying some great days together and appreciate them more than ever.  God is in control. Her next MRI is November 3 (in case you want to be very specific with your prayers.)

As a result, you don't get the pleasure of dealing with Joanie on your Delta Region matters...and are stuck with me.  I'll do my best to follow in her great footsteps of serving the members of our Region.  Updates will be posted here during the season.

If Joanie and I can pray for you, drop me an email at the Region office.

Joe